Well, that’s what most of us have had to do, never let them see you sweat if you were going to apply for that promotion of equal employment opportunity and that others apply for. We never really had many problems getting that job promotion or new job per say. What made it difficult to keep was the pain and stiffness and feeling like we have the flu, never rested, and hiding the fact that we really didn’t know what was wrong with us. All we knew is we didn’t feel well. And since there is no consistency to this illness, being inconsistent is what seems to get you in trouble faster than greased lightning!
Now comes the chicken or the egg philosophy. Was it a sudden illness or car accident or motorcycle accident or just some form of fall that woke up this ugly sneaky beast that says, “But you don’t look sick”? Or did it show up on its own through another illness and decided to jump on for the ride?
Does any of this even matter anymore? We just know everything we feel is amplified and there is no one in our non-fibromyalgia circle of friends and family that is ever going to understand. That’s where the grieving of your old life begins. We have to begin making adjustments so we can have some quality of life today.
The best thing I have done for myself is educate myself. In 1987, the American Medical Association (AMA) recognized fibromyalgia (FMS) a true illness and cause of disability. It still has a long way to go when it comes to treatment. The only way I felt I was to be believed of my pain was document, document, document my daily activities to find what works what doesn’t. I suspect it will never be finished and I have come to an understanding about this.
This is a very high maintenance illness. I know many times FMS has gotten in the way of even Flylady. Now I see it was more me that was getting in the way! Flylady is probably one of the easier tools we can use in our management of FMS because it is babysteps, jumping in where you are, and you are never behind. How refreshing if only we would use these simple steps.
So, since you can get used of the idea of having a control journal for Flylady, why not get yourself a control journal for Fibromyalgia. The book I consider the bible to this illness is “Fibromyalgia & Chronic Myofascial Pain” A Survival Manual by Devin Starlanyl and Mary Ellen Copeland. It is in it 2nd edition now and they call their control journal WRAP which stands for Wellness Recovery Action Planning It is developing a wellness toolbox and after all isn’t that what Flylady is doing? She has made available many tools she has already tested out and work well. Start being good to yourself. Fibromyalgia is like that inner brat tugging at you too and she will not stop until she is heard. Believe me I know. That is why I believe in The Flylady Way. I have been able to use these principles in many areas of my life and continue to look for more ways The Flylady Way can be applied.
I have given you some information about FMS, some tools that work, and help you and I find ways to increase our quality of life. One of the best tools and habits for me has been March Habit Getting Dressed To Shoes. I still have pain but these past 38 days I have not let it get the best of me. Keep Flying! Marilyn